Preserve Hope and Access to Live-Saving Treatments
Hope is a powerful elixir. My family was dealt an unexpected blow nearly 26 years ago when our son Gunnar was diagnosed with cystic fibrosis, a debilitating genetic disease for…
Comments on ICER’s March 15th draft evidence report, “Modulator Treatments for Cystic Fibrosis: Effectiveness and Value.”
Overall, we respect and encourage the trend toward value and will continue to lead meaningful conversations and a deeper dialogue around the meaning of value-related initiatives for patients. We believe…